Factsheet F69

Personalisation and the Right to Control

This Disability Alliance factsheet is a basic introduction to personalisation and the right to control.

What is personalisation?

The ‘Personalisation Agenda’ is intended to apply to all community care service users in England by 2011. Similar provisions have also been intoduced in Scotland.

The aim of personalised and integrated care planning is to provide a care plan that covers your full range of needs. It recognises that there are other issues in addition to medical needs that can impact on your total health and well-being.

A personalised care plan should therefore take into account not only your health but also your personal, family, social, economic, educational, mental health, ethnic and cultural background and circumstances. It should also focus on what you want your care to achieve, for example to help you live independently, achieve at school or return to work.

Personalised care funding will incorporate direct payments and individual budgets.

What is the the right to control?

The Right to Control is intended to support the personalisation agenda. It is a new legal right for disabled adults. It aims to give you more choice and control over the support you need to go about your daily life. It proposes that agencies should work together to provide personal budgets made up of several funding schemes. This funding can include:

  • access to work support
  • direct payments
  • disabled facilities grants
  • independent living fund payments
  • supporting people payments

There are a number of pilots (Trailblazers) in local authority areas testing how the Right to Control will work for disabled adults. If you are living in these Trailblazer areas you will be able to combine the support you receive from up to six different sources and decide how best to spend the funding to meet your needs.

You will still have the option of continuing to receive your existing support.

The first five Trailblazer pilots started on 13 December 2010. They are:

  • Essex County Council
  • Leicester City Council
  • London Borough of Barnet
  • London Borough of Newham
  • Surrey County Council (two parts only: Epsom and Ewell Borough Council and Reigate and Banstead Borough Council).

Barnsley Metropolitan Borough Council and Sheffield City Council will become Trailblazers on 1 March 2011.

Greater Manchester (including Manchester City Council, Oldham Council, Bury Council, Stockport Metropolitan Borough Council and Trafford Council) will become Trailblazers on 1 April 2011.

What happens after the pilots?

The Office for Disability Issues (ODI) will evaluate the results of the Trailblazer pilots and then make a decision about whether there should be a wider roll out of the Right to Control scheme.

Where can I get more information?

Contact your local authority social services department for more information on how the personalisation agenda is being implemented in your area.

If you are in one of the Trailblazer pilot areas and are a service user you should be contacted about your right to control. Alternatively you can also contact your local authority social services department.

Guidance on personalised care planning for commissioners of health and social care services is contained within Supporting people with long term conditions: commissioning personalised care planning. You can find more information on this at http://www.cara-online.org/welfaredisabilityandbenefitsfactsheets.html.

The Office for Disability Issues has information on the Right to Control at www.odi.gov.uk. It has published a short guide, Right to Control: information for advice organisations, aimed at organisations that advise, and receive enquiries from, disabled people. The guide includes information about the Right to Control, who is eligible and contact details for each Trailblazer. You can download this at http://tinyurl.com/6ayuftd.

You can read summaries of discussions regarding personal care planning on our Independent living - choice and control for disabled people conference web pages at http://www.cara-online.org/welfaredisabilityandbenefitsfactsheets.html.

You can get more informaytion by contacting your local advice centre, such as the Central Africa’s Rights & AIDS (CARA) Society or any citizen’s advice bureau.

You can also get more information about the benefits mentioned on our website at www.cara-online.org. Much of this information is contained in factsheets available at www.cara-online.org.

You can also obtain copies of these factsheets/publications by contacting CARA, 18 - 22 Ashwin Street, Dalston, Hackney, London E8 3DL United Kingdom - Tel: +44 (0) 844 478 0015 -Mob: +44 (0) 795 695 2645 -Fax: +44 (0) 872 115 8436 -Email: info@cara-online.org

25 April 2011

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